Empowering Patients Through Education: Online Education Resource for Patients with Prostate Cancer Who May Require Post-prostatectomy Radiotherapy
Eli Lechtman PhD, Ewa Szumacher, MD, MEd, FCRP(C) , Merrylee McGuffin M.R.T.(T.), MSc, Aaron Cumal M.R.T.(T)BSc, Eirena Calabrese RN, Deb Feldman-Stewart PhD, Julie Burnett BA(HONS), BSW, MSW, RSW, Janet Ellis MD, FRCP(C), PhD, Katija Bonin BASc, Lisa Di Prospero M.R.T.(T.), BSc., MSc, Christopher Townsend, Tamara Harth Hon. B.A., MLIS, Janet Kimura, Cara Rice
1) To develop an evidence-based, interprofessional education resource about post-prostatectomy RT for patients, their families and healthcare providers
2) To evaluate quality and usefulness of the education resource for prostate cancer patients
Created needs assessment survey to identify education topics through two previous studies:
1) Input from 45 interprofessional genitourinary healthcare experts across Canada (urologists, radiation oncologists, nurses, radiation therapists, and others)
2) Input from 35 prostate cancer patients
Data from previous studies combined to develop 73 essential questions and answers covering broad range of topics related to:
- diagnosis and staging
- treatment options
- potential benefits and risks
- side effects
- psychological issues
- health promotion
- sexual function
- Partnered with mdBriefCase, Canada's leading provider of online Continuing Health Education for healthcare professionals, to implement tool via proven online platform
- Validated content was adapted for eLearning environment on MedSchoolForYou.ca, a new Canadian Patient Education Portal, providing free, credible, Canadian disease education to patients (see screenshots above)
- Study took 2 years to complete
A small group of prostate cancer patients
Mixed method feedback:
This online resource can benefit patients, their families and their healthcare providers.
This tool can facilitate the communication process between patients and their inter-professional health care teams and allow patients to ask more relevant questions that are important for them in their current situation.
We hope that through the Canadian Association of Radiation Oncology (CARO) we will be able to disseminate the tool to a wider audience of prostate cancer patients and their providers across the country and assist them with their treatment decisions.
Our education tool can influence other online patient-education tools in radiation oncology which can assist patients during their cancer journeys from diagnosis to cancer survivorship.