KIDSCREEN-52: AN ASSESSMENT OF HRQOL OF HIV CHILDREN ATTENDED IN A TERTIARY CARE HOSPITAL IN LISBON A.M. Abrantes1, A. Mouzinho1, F. Prata1, I. Esteves1, J.G. Marques 1 1Unidade de Infecciologia Pediátrica (Coordenador: José Gonçalo Marques) Serviço de Pediatria Médica (Directora: Celeste Barreto) Departamento de Pediatria (Directora: Maria do Céu Machado) Hospital de Santa Maria - Centro Hospitalar Lisboa Norte, EPE
Health related quality of life (HRQOL) is a descriptor of perceived health that allows planning, monitoring, and evaluating of health-related interventions in the community. KIDSCREEN-52 is a generic HRQOL instrument that identifies children at risk for low well-being and poor health [1,2]. HIV infected children are at risk due to the infection’s natural history, HAART side-effects, low income and social risk. Some studies have addressed this issue but information regarding the HIV infected Portuguese children scarce or unavailable. This study aims to identify HIV infected children at risk of low HRQOL.
The self-report HRQOL questionnaire KIDSCREEN-52 (Portuguese version) was administered to all the consenting 11-18yo HIV infected children attending the Pediatric Immunodeficiencies Clinic of Hospital de Santa Maria [HSM] during 2011, and to their parents. Data was transformed according to the KIDSCREEN Group recommendations and the sample data were compared with the national reference data using student’s T two tailed test (the 10 dimensions and global score follow a normal distribution after Kolmogorov-Smirnov test). Data from children and parents samples were compared using a Wilcoxon test for paired samples. Consent for the use of the questionnaire was obtained from the KIDSCREEN Group.CONCLUSIONSHRQOL of 13 HIV infected children attending the Pediatric Immunodeficiencies Clinic of HSM was not inferior to the HRQOL of the Portuguese pediatric reference population. However, they scored
13 patients and their parent/tutor consented to participate in this study.•Children Sample (n=13):•12 are female and their median age is 13.54yo (11-16Yo)•13 with HAART.•Their reported HRQOL was not inferior to the national reference population.•The reported score in Physical Well-Being and Financial Resources dimensions was inferior to the national reference population scores.
Parents Sample (n=13):•8 are female (grandmother, mother, stepmother) and their median age is 51.88yo (17-77yo)•Their reported HRQOL was not inferior to the reference population.•The reported score Physical Well-Being, Psycological Well-Being, Moods and Emotions and Financial Resources was inferior to the national reference population scores.
There was no statistical difference between the HRQOL assessed by Children and HRQOL assessed by their parents except for the dimension Psycological Well-Being (lower as assessed by the parents).
HRQOL of 13 HIV infected children attending the Pediatric Immunodeficiencies Clinic of HSM was not inferior to the HRQOL of the Portuguese pediatric reference population. However, they scored low Physical Well-Being and Financial Resources dimensions – this suggest the need for a tailored approach and warrants future follow up with the same instrument. Population oriented health policies and multicentric HRQOL assessment of pediatric HIV patients is currently needed in Portugal